Patient Advocacy Voices

Von: Sanofi US Patient Advocacy
  • Inhaltsangabe

  • Patient advocacy is a critical area in healthcare that is transforming the lives of patients across the country by helping them overcome barriers to access and care. Join Sanofi US Head of Public Affairs and Patient Advocacy, Eric Racine, and his co-hosts to meet some of the unsung heroes leading patient advocacy organizations. In each episode, we will discuss the challenges each group has faced and share actionable insights to address gaps and help make the U.S. healthcare system work better for patients. Whether you're a seasoned advocate or new to the field, we hope this podcast will open your mind to new ideas and inspire action. Subscribe now and become part of a community dedicated to making a difference for patients.


    This podcast is provided as a resource only and does not constitute an endorsement by Sanofi of any particular organization or its programming. Additional resources on this topic may be available and should be investigated.

    © 2024 Patient Advocacy Voices
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  • Taking a Business Approach to Advocacy and Philanthropy - How a Venture Philanthropist Invests to Impact Peoples’ Lives
    Sep 16 2024

    David Panzirer, a trustee of the Helmsley Charitable Trust, discovered his calling when his daughter was diagnosed with type 1 diabetes (T1D). A businessperson at his core, David views healthcare grants as investments, and his team continuously develops a deep understanding of the ecosystem as a key success factor to maximize their impact. Learn from one of the most significant players in the field of venture philanthropy, his team’s portfolio approach to healthcare investments, and their singular focus to improve people’s lives living with disease. Sanofi host Eric Racine and co-host Andrew Vilcinskas – a T1D patient himself – discuss with David the intersection of advocacy, philanthropy and business.

    The Leona M. and Harry B. Helmsley Charitable Trust is a global philanthropy committed to helping people live better lives today and creating stronger, healthier futures for individuals and communities. They partner with people and organizations to invest in new ideas or research across six program areas. The Type 1 Diabetes (T1D) program is dedicated to helping the global T1D community live safer, better, and more fulfilling lives today while funding advancements in research and technology for a better tomorrow.

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    17 Min.
  • Long-Term Impact: Aggregating Data to Accelerate Innovations for Patients
    Aug 21 2024

    To help make an impact for patients, it's important to have a comprehensive understanding of how a disease impacts their day-to-day lives. Michael Osso, Chief Executive Officer of the Crohn's & Colitis Foundation knows this well. He and his team created a comprehensive research ecosystem that harnesses data– from reported anecdotes to clinical data, biosamples and more – to help researchers, patients, advocates and care teams get a holistic view of inflammatory bowel diseases (IBD) and drive advancements in the space.

    Sanofi host, Eric Racine and co-host Michael George discuss with him the importance of taking on such a large-scale project – one step at a time – and the dedication to building patient level data to inspire and accelerate research innovations for patients with IBD.

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    14 Min.
  • An Advocate's Journey to Put Patients at the Forefront of Research
    Jul 9 2024

    Patient advocacy groups have become a powerful force engaging with clinical researchers. The National Bleeding Disorders Foundation (NBDF) has been one of the best at driving a research agenda that matters to patients, yet they still saw areas for improvement. Maria Santaella, Vice President of Research Strategy at NBDF, realized the importance of including patient voices at the very start of and throughout the research process. This is what it takes to ensure researchers understand the unmet needs and complications people live with every day. Learn how NBDF evolved from supporting researchers to ensuring that the lived experience of people affected by bleeding disorders is truly at the center of research. In this episode, Sanofi host Eric Racine and co-host Jane Smith discuss with Maria how to get to the next level of integrating patient voices and evidence into research.

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    14 Min.

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