Travelers to Unimaginable Lands
Stories of Dementia, the Caregiver, and the Human Brain
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Holly Linneman
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These compelling case histories meld science and storytelling to illuminate the complex relationship between the mind of someone with dementia and the mind of the person caring for them.
“This book will forever change the way we see people with dementia disorders—and the people who care for them.”—Lori Gottlieb, author of Maybe You Should Talk to Someone
After getting a master’s degree in clinical psychology, Dasha Kiper became the live-in caregiver for a Holocaust survivor with Alzheimer’s disease. For a year, she endured the emotional strain of looking after a person whose condition disrupts the rules of time, order, and continuity. Inspired by her own experience and her work counseling caregivers in the subsequent decade, Kiper offers an entirely new way to understand the symbiotic relationship between patients and those tending to them. Her book is the first to examine how the workings of the “healthy” brain prevent us from adapting to and truly understanding the cognitively impaired one.
In these poignant but unsentimental stories of parents and children, husbands and wives, Kiper explores the existential dilemmas created by this disease: A man believes his wife is an impostor. A woman’s imaginary friendships drive a wedge between herself and her devoted husband. Another woman’s childhood trauma emerges to torment her son. A man’s sudden Catholic piety provokes his wife.
Why is taking care of a family member with dementia so difficult? Why do caregivers succumb to behaviors—arguing, blaming, insisting, taking symptoms personally—they know are counterproductive? Exploring the healthy brain’s intuitions and proclivities, Travelers to Unimaginable Lands reveals the neurological obstacles to caregiving, enumerating not only the terrible pressures the disease exerts on our closest relationships but offering solace and perspective as well.
Cover art credit: © 2022 C. Herscovici / Artists Rights Society (ARS), New York
©2023 Dasha Kiper (P)2023 Random House AudioKritikerstimmen
“Kiper’s work is deeply moving and often surprising. Through case studies both tragic and hauntingly relatable, she provides scientific grounding for what the beleaguered caregivers go through. With understanding comes the permission for, and perhaps a chance at, self-forgiveness.” —The Wall Street Journal
“Kiper . . . evinces a capaciousness of sympathy and understanding for Alzheimer’s patients and (especially) their caregivers. . . . For the frustrated caregiver, trapped in a vicious psychodynamic that is dehumanizing to both parties, this may provide some valuable solace.” —The American Scholar
“An elegant, empathetic, immensely informative, and insightful primer for caregivers as they try to navigate the fragmented, skewed world of the cognitively impaired.” —Psychology Today